Question:
What type of neurofibromatosis does my child have?
Look For Indications That Your Child Has Neurofibromatosis Type 1
As a genetic neurological disorder that affects children from birth, neurofibromatosis can come in certain stages based on the age of your child. The most common type is neurofibromatosis type 1, or NF1. Your child will show certain physical signs that they may have NF1, such as:
Head Circumference
Your child may have a larger head circumference than normal, almost like a baby doll appearance with a large head attached to a smaller body.
Cafe-au-lait Spots
Another sign of NF1 are a large number of birthmarks over your child's body, except for the face. Referred to as cafe-au-lait spots, if your child has four or more that are larger than a dime, it's possible your child has NF1.
Abnormal spine, tibia or skull
The spine, skull bone, or tibia will abnormally grow as the bones enlarge. If your child shows a severe curve in the spine, this is called scoliosis.
Neurofibromatosis Frequently Asked Questions
What should I do if my child shows learning disabilities caused by neurofibromatosis?
What should I look for on my child if he/she has been diagnosed neurofibromatosis?
Are there other symptoms associated with Neurofibromatosis?
What type of neurofibromatosis does my child have?
What determines that my child has neurofibromatosis type 2?
Could my Neurofibromatosis actually be Schwannomatosis?
What can I do for my body so it can be healthy during chemotherapy treatment for NF?
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