Question:
What should I look for on my child if he/she has been diagnosed neurofibromatosis?
Signs to Look for to Determine if Your Child Has Neurofibromatosis
Every year, children become diagnosed with a form of neurological genetic disorder that can cause tumors on nerves, the spinal cord, in the brain, and under skin. This disorder, known as Neurofibromatosis, is often diagnosed in newborn children who are born with brownish-colored spots on the skin.
While these spots look like birthmarks, if your child has six or more that are larger than a dime, your doctor may make an early diagnosis of Neurofibromatosis, or NF. Early detection of tumors is the best way to prevent nerve and organ damage in your child.
Set up Yearly MRI and Ophthamology Appointments
By setting up yearly appointments, the doctors can determine if any tumors are developing in the brain or on nerves in the eye. If tumors are detected, treatment can begin early to remove the tumors.
Feel for Unusual Lumps Under Skin
Keep an eye out for lumps appearing under your child's skin, or if your child has a hard time moving arms or legs. This could indicate tumors growing under the skin. If you suspect a tumor, contact your pediatrician immediately.
Hearing Loss
More common in older children, hearing loss can affect younger children as well. Children experience hearing loss when tumors develop on acoustic nerves. If your child tugs at his ears, complains about ringing noises, or seems to not hear you when you speak his name, seek medical help immediately.
Neurofibromatosis Frequently Asked Questions
What should I do if my child shows learning disabilities caused by neurofibromatosis?
What should I look for on my child if he/she has been diagnosed neurofibromatosis?
Are there other symptoms associated with Neurofibromatosis?
What type of neurofibromatosis does my child have?
What determines that my child has neurofibromatosis type 2?
Could my Neurofibromatosis actually be Schwannomatosis?
What can I do for my body so it can be healthy during chemotherapy treatment for NF?
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| William Pirraglia |
